PDD-NOS

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Comment by Spring Sargent on January 23, 2012 at 7:00pm

HI everyone,

My name is Spring and I have a 9 year-old daughter who was diagnosed last year with PDD-NOS but I always wonder if the diagnosis is right.  She is such a joy but more difficult than my toddler at times.

I love her and am glad to have found a forum to learn from ......thank you

Comment by Meredith on September 13, 2011 at 7:43am

I searched and searched for a book to start explaining ASDs to my son (almost 6yo) who has PDD-NOS. I couldn't find one, so I wrote my own. I'm pleased to announce that "Ben has Autism. Ben is Awesome!" is now on pre-sale through Barnes & Noble! For some reason the cover art doesn't come up, but the illustrations are beautiful watercolor/pencil drawings, and the narrative is very pro-neurodiversity. Check it out: http://www.barnesandnoble.com/w/ben-has-autism-ben-is-awesome-mered...

Comment by Jess C on September 12, 2011 at 10:23pm

Chris, thank you so much for your comforting response. I think I've reached the point that you spoke of, where I just don't have the energy to keep up the Supermom appearance anymore.  I'm just too tired and I am feeling myself begin to slip. In my search for "self help" I came across different articles on the PTSD/ ASD connection and I could not believe how much I saw myself in the symptoms. I have to believe that it gets better, that we get stronger, as time goes on.  But, uggggh!

Comment by Chris Prange-Morgan on September 12, 2011 at 9:21pm

Jess, I know that feeling...and it is hard to be gentle to ourselves.   A year ago I really felt like I was falling apart, seriously.   Once we started ABA therapy, it took a huge load off and my son started progressing very well (like you, I felt I needed to get my son to make progress...it was my job and I took that responsibility seriously).   I think that it is really important to have some kind of support, because we can't be everything to our kids, all of the time.   Now I'm always up-front with folks about my being stressed out.   I don't have the energy to even try keeping up the supermom appearance anymore!      

Comment by Jess C on September 12, 2011 at 11:29am

I'm the mother of 4 beautiful, amazing children, ages 16, 14, 10 and 2.  My youngest son was diagnosed with PDD-NOS this past February.  He is just shy of 3 years old now and I have been devoting every drop of energy that I can spare into his development, specifically into helping him communicate. The "Signing Times" videos have been such a blessing to us, as he now signs many of his wants/needs. I work very hard to stay positive, and am successful most days (I think) but I am SECRETLY a stressed out, exhausted, terrified, nervous wreck and am so afraid of missing this precious "window of opportunity" that the doctors and therapists so often speak of.  I am running as fast as I can, to do all that I can. To the outside world, I'm Supermom. They're sure I've got it all together and are amazed at my ability to stay so positve. But, the truth is, I'm falling apart from the inside out.... and that's why I'm here! ;-)

Comment by watsonsherry on February 25, 2011 at 11:06am

My name is Sherry and my daughter Emily is 7.  Emily's diagnosis is PDD/NOS.  To me that is just a bunch of letters that doesn't tell the story of Emily.  She is an only child who is smart to me in her creativity and artistic side.  Like most children she can learn it just takes more time and practice, so I must be patient with her.  She has a way of getting through all the crap that adults get lost in and gets right to the point and an answer.  She wants to be a doctor/vet/actor/astraunaut, etc. etc. etc.  She has good days and bad days like most of us.  She's not at the bottom and she's not super smart - She's like most children, somewhere in the middle.  I have known, like many mothers that Emily looked at life through different eyes.  So this journey many times is about me trying to learn how Emily works and not trying to make her fit into my little box of raising a child.  Sometimes I remember this and sometimes I have to be reminded.  Websites/blogs/friends, etc. help keep me on track.  That is why I signed up for this website.

Comment by Barbara Giordano on February 14, 2011 at 6:33am

My son was diagnosed with PDD-NOS at age 3.  He is now 9 years old.  We had him reevaluated at the NYU Child Study Center.  We have a great Dr. there and they give lots of support after the evaluation.  I live in a small and difficult school district.  They wanted to classify my son as MR although we have extended documentation that proves otherwise.  Plus, he is very high functioning and in no manner suggests MR.  I write a blog about my experiences with special education:  One Plus One Doesn't Equal Two

I've a number of resources posted there.  Please follow and add your thoughts, comments and experiences to it.

Comment by Chris Prange-Morgan on February 13, 2011 at 8:34pm

Our son has ABA therapy 25 hrs / wk.  (It can be as many as 35 hrs/wk)  It is a lot, but the payoff is SO worth it (so is the respite!)    We've also got speech therapy and early childhood special ed.   It's good for the socialization aspect especially.     We've seen a great deal of progress since starting ABA in Sept.   I'd say do it!  :)

Comment by Pamela Eckenrode on February 12, 2011 at 9:46pm

Hi everyone,  My name is Pam and I am a single mother of a 10 y/o boy with PDD-NOS.  He was diagnosed at Yale in April 2010.  We have been blessed with an excellent program there as well as a great support system through his school and so many other resources offered here in Milford.

Comment by Pamela Eckenrode on February 12, 2011 at 9:39pm

I know with my son who is now 10 y/o nail cutting was a horrible time.  It didn't change until he got old enough to help me cut his nails....he feels much better when he feels he is in charge of the situation.

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