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where parents of kids with special needs connect

High Functioning Autism

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High Functioning Autism

I wanted to create a group for parents of children with High Functioning Autism. My son's diagnoses is new, so I am trying to learn all I can from others. Having support is so very important. Introduce yourself! Let's help each other!

Members: 37
Latest Activity: May 5

Discussion Forum

Renaming the group 3 Replies

Hi - I am a parent of twins with autism. I am also a professional in the field. I do Professional Development for teachers of children with autism in NYC. We are trying to move away from the term…Continue

Started by Jill Post. Last reply by Ma_otter Jan 20, 2011.

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Comment by Laureen Kuehl on March 4, 2012 at 2:17pm

Hi I just joined the group.  Our family has triplets who are all on the spectrum.  Two boys and a girl.  One of the boys has Aspergers and also a hearing loss.  The other one has PDD-NOS.  My daughter has Autistic Disorder.  We also have an older daughter who does not have it.  My husband thinks he may have it but has never been diagnosed.  Looking forward to being a part of this group.

Comment by Heather Amy Price on December 22, 2011 at 11:45pm

hi all, I have twins turning 5 soon--- one has classic autism and one has pdd-nos.  I look forward to learning from you all!

Comment by Jonni Segnar on July 11, 2011 at 3:47pm

Would love to have you join our website www.aspergermomnetwork.com.  The best way to gain information is through other parents living a similar experience.

I also have a personal blog - www.thatsbaloney.com - and you might like reading The Story of Michael (look for the labels).  I've documented our story from birth until now (age 12) in our Asperger journey.

Comment by Char Corbett on February 24, 2011 at 7:28am
Hi,

My daughter is 9 years old (4th grader) and has newly been diagnosed with autism. It appears she's on the high functioning end of the spectrum, but we're still assessing where abouts on it. Her diagnosis has been delayed because she was incorrectly identified with learning disabilities three years ago. It's been a long journey. Feeling very relieved that somebody finally agrees with me about her challenges - I've been saying something is deeply wrong since she was 3 - but I'm also very overwhelmed that the reality is finally here. I was directed to this site by the behavioral specialist we've been working with since November. I'm feeling the most urgent need right now is to get her IEP changed but I want an advocate with me at all meetings from here on out because I'm in over my head and dealing with a school district/elementary school and a teacher that hasn't been the most cooperative. Any suggestions?
Comment by Jen Troester on February 13, 2011 at 7:51pm
Hi, I am Jen. My 7yo is HF. You can read about it here:http://www.livinglifewithasideofautism.com/
Comment by Cynda Lynn Smits on February 11, 2011 at 6:48pm
My son will be 13 this summer, he too was diagnosed in 1st grade with adhd and high functioning autism.  He has come along way, but still at times has a hard time with kids picking to get him mad.  My question is...How open should you be with all the other kids out there in the school district?  If they knew would they be nicer and more understanding, or would they pick more?
Comment by Mara Brevard on February 11, 2011 at 10:46am
Hello! My son Robert is 16 turning 17 in July.  We have known since he was 2 and a half that he has autism..specifically Asperger's.  He has overcome so many obstacles in his life. He is an extremely intelligent, handsome, funny guy. He actually opted to take physics this year in a regular class setting instead of a team taught setting which has both a regular teacher and a sp. ed. teacher.  He still stims, and doesnt see cues in social behavior that the rest of us do.  He will still do things that really irritate me ( one is picking his nose in public) that I still haven't been able to get him to stop doing!  He is a perfectionist and takes much more time to complete a task (doing the dirty dishes for example..1 and half hours!).  I am worried about his ability to get a job and function outside of the home.  He still has sensory issues and shuts down at times.  He wants to create video games and to go to college to learn to do this.  I am scared.  My younger son who is 14 is his best friend along with one other boy they have known for 5 years.  He doesnt do well communicating with the public and has NO common sense!  He doesnt want to learn to drive, stating he usually makes mistakes about 50% of the time and that would be a bad thing in a car! I have other children including an 11 month old and I feel like I should be spending more time on Robert's issues.  I get caught up in day to day stuff and time flies by and now it's time to look at colleges!?! What happen to the years? I am hopeful! But scared! =0)
Comment by Heather Sawoscinski on February 11, 2011 at 8:53am
Hi, I'm a parent of an 11 year old boy who was first diagnosed w/Aspergers. His diagnosis was changed by a new group of specialist to High Functioning Autism. He is in self contained ESE and is in the 5th grade. He also has a seizure disorder, ADHD, Anxiety and OCD. He is doing really well for all that has been handed him. He has a 10 year brother that is very good at looking out for him. And we are blessed to have both of our little boys. We learn more everyday w/any new bridge we have to cross. Our biggest one recently is coming up this next school year. He will be of age to go to middle school and we are very worried about this. His ESE teacher has some concerns also.
Comment by Margarita Gonzalez on January 17, 2011 at 3:58pm
Hi, i'm a parent of 4 boys one has cerebral palsy,12, and my almost 9 yr old son has autism. He speaks English and spanish but does not dominate either. He is in a regular class setting but is not doing well in school he is trap in the school system where he doesn't benefit from a special ed class nor a regular class setting. the most fustrating thing at this moment is that i see his self- steem crumpling down since his classmates notice his behavior and he gets teased about it.
Comment by Laurie Sweeney on January 17, 2011 at 11:25am
Hi Jennifer. I live in NY and my daughter is almost 8. My blog is at http://adoptivefamilyno2.blogspot.com/  She was diagnosed in November after receiving EI since she was 7 months old. She is also FASD and Bipolar, but the ASD is much more prominent in her social interactions.
 

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