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hi everyone. i am new here and not really sure if i belong here. i have 3 great kids and our youngest who is now 3, where did the time go?? but he is on his second set of ear tubes. first one at 18months and second set at 2.5yrs. i really wish doctors did them a lot sooner but what do parents know right?? lol. so now is speech is way delayed, but he understands everything that is said;. he can say maybe 10 words. his best word is MA! he will start special ed preschool this year 1/2 program. i am finding potty training a bit harder with him, not sure if its due to his speech delay or just him being strubbon, his siblings were potty trained at 2.5 yrs, this is a very cool group. if i don't belong here i understand just let me know;. thanks beth
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Replies to This Discussion
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Permalink Reply by Diane Vaughn on
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Hi Beth & welcome to Hopeful Parents! I'm Diane, wife to Dave and mom to 32-weeker Evan who's now 9. He has hypotonia, hypermobile joints, sensory issues, and dyspraxia.
What do you mean by 1/2 program? Do you mean a half-day? How long has your 3yo been in speech? Any questions? :)
Diane.
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Permalink Reply by beth stine on -
yes 1/2 day program. :) he has had speech since his first set of tubes. but before he had his tubes put in each time his hear was very little. he couldn't even hear bird sing or water drip! questions?? any ideas how to get him talking more? whats the best way to potty train him? is it due to his hearing or jacob being strubbron? if hes naked then he will make it to the potty almost all the time, if you put underware on him he will pee/poop in them.
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Hi Beth~
We did the naked potty training for a long time. Evan has sensory issues and he couldn't have cared less if he was wet or dirty. Now if I had to bring out the carpet shampooer THAT bothered him. :) Eventually he got it. I don't think potty training and deafness are related...you might have to consider stubbornness or him just not knowing or caring that he needs to go.
Jacob has been in speech for about a year and a half, I guess, right? Are you doing private speech, or are you enrolled in the school district? Has his SLP suggested that he might have another, underlying condition besides not hearing well due to fluid in his ears? I don't know how much he's talking, but since you seem to want him to talk more, you don't feel like it's enough. I'd definitely be talking to the speech therapist if you don't feel he's making enough progress. Hope this helps! :)
Diane.
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Permalink Reply by beth stine on
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i would love to do the naked potty training thing but not with an inhome daycare.lol
yeah early on has been comming in, at first twice a month and then it was once a week and now since hes 3 hes too old for early on. so the next step is special ed where he will also see a speech therapist i think once a week. they did the test were they knocked him out then put the electrodes on his head to see if his brain was hearing everything and it was, so he has no deafness when he has the tubes in. i don't know who to talk to about all this. i don't know who to ask what else can i do to help him. thanks diane
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Will your insurance cover private speech therapy? Your pediatrician should refer you. That's probably who you should be talking to. Did Early On give you some kind of information about the extent of Jacob's speech delay?
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Permalink Reply by beth stine on
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i know before we switched doctors due to them closing they were gonna start the whole spech thearpy thing but they never did. things got busy kinda forgot then i talked to early on about it so thats when they bumped it from twice a month visits to 4 visits a month. i know his large and small motor skills are where they belong, his thinking/memory skills are great, its just the darn speech. he understands what you tell him, you can give him a two or three step command and he can do it.
ball, me, boobah(have no clue what that means lol) blue, green, more, no, stop, ooo ahh aa(for monkey) we will bark, just started to say pa, pee,poop please, these are his major words that he knows, iam sure he has more but these are the main ones.
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Permalink Reply by Kimberlie Morris on
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Hi Beth,
Welcome!
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Permalink Reply by Michelle Knudson on -
Hi Beth,
I'm also new and your story sounds so much like mine! My son Ryan had tubes at 10 mths and again at 3 years old. He had recurring ear infections from birth till the last round of tubes at 3 yrs. He started special ed pre-k last year and will also be attending again this year. I started with speech therapy when he failed his pre-k exam. After a year of therapy, he was diagnosed with apraxia of speech with developmental delays and fine motor delays.
Potty training....I just got him trained at 4 yrs old. No idea why he just didn't get it. It took the help of the pre-k & daycare to work together. It was so frustrating and alot of washing!
Ryan is my eyes is a 2 year old stuck in a 4 yr olds body. Emotionally, mentally and physically he just isn't 'there'. I feel for what your going through. It's very frustrating and difficult to understand.
Feel free to contact me.
Michelle
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Hi Michelle~
Apraxia of speech is a motor-planning disorder, and so it's very likely Ryan has trouble with motor planning in other ways as well. It's sometimes referred to as "limb apraxia" or "global dyspraxia", especially since he's got other developmental delays as well. Some professionals also include dyspraxia on a sensory issues "spectrum". Evan was five before he was potty trained, he's got sensory issues AND he's very dyspraxic. So I understand where you're coming from. The good news is, the more often Ryan does the same tasks, the easier they should get. :)
Diane.
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Permalink Reply by Misty McLaughlin on
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Hi. My name is Misty. I was reading some of the posts and yours caught my eye so I thought I'd reply. My son is 11 and has had several sets of tubes. He got his first set of tubes when he was 2.5 yrs old and in his 2nd year of special needs preschool. He had speech delays and wasn't completely potty trained til after he was 4. From what I've read/heard, the trouble with potty training is due to their issues and not just being stubborn.
When he started the special needs preschool, I thought to myself that it didn't seem like he'd learn much in just half day of preschool. Boy, was I wrong. He made so much progress there. We held him back a year and kept him in preschool another year and sent him to kindergarten at 6.5 yrs old. Do I regret the 5 years he spent in special needs preschool? Not one bit!!! For him, it definitely made a world of difference. Feel free to contact me any time.
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Permalink Reply by beth stine on
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hello misty. jacob just had his 3yr doc appt and she told me that most kids who have had ear issues don't potty train early. they don't really know why, but they don't worry until the child is 4. but he does great if he has nothing on his butt, but as soon as you put underware on its a lost cause. :( hes getting some,new words or maybe the old words are getting clearer, who knows. but he will babble a converstation all of which i don't understand and he just started that maybe within 2 months. so i know hes getting thier at times its just hard not to compair him a "normal" 3 yr. my friend has a 2yr old and he talks more and better than jacob. i know he will get it but some days its just hard to wail
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Permalink Reply by Misty McLaughlin on
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Hi, Beth.
Did he have the same problem with diapers as he does with wearing underwear? Maybe it's a sensory issue? I know it's hard not to compare them to others. I still have that issue at times with my son and he turned 11 in March. Last weekend, we decided to go out to eat and go to the movies. For some reason, when my husband bought the movie tickets, he bought them for a later showing so we ended up have a couple hours to kill between eating and the movie starting. This wouldn't have been a problem for me or my husband but it can be for our son. who was with us. We tried taking him into some specialty stores that we thought he'd like but it didn't work out so well. Yet I saw other kids walking around with their parents, headed into stores and nice restaurants with no issues at all. I made the comment that I wished we could do that just once.
So I agree. it is hard. I just need to follow my own advice and appreciate the progress he has made.
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