Artificial Ventilatory Support?

We're looking for someone in the Washington, DC area who has (or had) a young child with a life-limiting dx who is ventilator-dependent.  Anyone know someone who is willing to talk with a mom in the metro area to share their experiences/decision-making process about whether to keep the child on artificial ventilatory support?  Contact nancyd@p2pusa.org, cc:  ksbrill@comcast.net